Thursday, 26 December 2013

God Is Merciful

I was quite desperate for a ride home. The kids weren't behaving and I had no luck with the cab company. I hate to feel like I wasn't going to make it. Yet receiving help seemed shameful and it was equally difficult for me.  I walked out of Singapore Cheshire Home with the kids, not knowing what to expect or do. On the way I scolded them for being so uncooperative and wilful.

Then I saw a cab turning out from another home. We were some distance away, so I waved to get his attention. Fortunately he saw us. It must be our lucky day. God must have heard my panic cries and sent us some help.

Thursday, 19 December 2013

If I could

If I could... I would have remain single and lead a carefree life...

Tuesday, 17 December 2013

A Prayer

Dear God, I may not understand your reasons or agree with your way of doing things... but I will listen and follow your lead. Show me the way, give me the strength I crave and have mercy on my soul. Amin.

Saturday, 14 December 2013

Darkness

I watch helplessly as a blanket of darkness engulf us, slowly but surely. We haven't got any good news for the past year, I suppose I can live with that. I told myself that God has a plan for us and we'll pull through this with optimism and determination. Now I'm tired and I can't hold on anymore. Soon our world will come tumbling down with us buried underneath. Perhaps I can finally rest then?

Monday, 18 November 2013

Bad Feelings

Sometimes I feel that I have done great wrong in my life and nothing I ever do will make my life worth living again. Depressing and pessimistic as it might sound, that's exactly how it's like for me. My hopes ride on a roller coaster and today, it's all the way down. And all these are not helping my kids who are already very emotionally sensitive. 

Tuesday, 29 October 2013

In The Bus

I was in a bus heading for Alfee's school when I noticed an annoying sound. Somebody left a plastic bottle in the bus and it was rolling around as the bus moved. I looked at it and decided to pick it up when I had to alight later. 

Then an old man sitting near me, beat me to it. He reached down and picked it up. Then he held on to it together with his bags of newspapers and used plastic bags. He's probably the garang guni man, I told myself. He soon got off with his load. Instead of walking off, he put his bags on the seat at the bus stop and dropped the bottle into the bin nearby. 

I was speechless! While I was grumbling to myself about the lack of civic mindedness in Singaporeans, this unassuming old man just did what he thought was a naturally right thing to do. I wouldn't procrastinate or hesitate anymore!

Then I saw a very young boy and his dad board the bus. The cheerful chap sat beside another old man who looked like his day could have been better. And it did. The boy smiled at him, flashed his EZlink card proudly and attempted to make small talk. The old man was amused and grinning by the time the duo alighted. 

This reminded me of what CK and I discussed the night before. His Korea-born Australian colleague noticed that Singaporeans in general are grouchy, impatient and competitive. We wear a frown and avoid eye contact with strangers. We criticize the virtues and social behaviours of western kids and teenagers yet our seemingly educated lot seems to be rated much worse. 

My Caucasian neighbour, whom we always bump into in the lift, smiled and say 'good morning!' to us even though we don't know each other. Although we responded, we never initiated any conversation and that must be regarded as unfriendly or rude to non-locals. We aren't the worst though. Sometimes, I would hold the lift or ask which floor others need to go, without getting an eye contact or even a reply from them. 

Tuesday, 15 October 2013

Unwell...

I feel unwell today. I feel like throwing up and maybe just get rid of my stomach totally. My head is heavy and tight. If it's PMS, I really hate being a woman, especially a sick one. I hope things get better soon. I shall go get a menstrual Panadol or maybe two. 

Thursday, 3 October 2013

Bad Manners

I should have acted accordingly and tell these people off, but the coward in me won... this time. These young, abled people sat there asleep in their perfect poses or remained very focused on their smart phones. I hate to condemn others but I get upset when I see selfishness. When they left, I made loud gestures to the elders to take their seats. All said they were getting off and rather stood. Some people saw the exchanged and looked away, presumably ashamed. Nobody dared to take the seat anymore. Ok, I have redeemed myself.

Thursday, 26 September 2013

Kindred But Broken Spirit

I am starting to read up on other suffers' experiences on Fibromyalgia and Sjogren's Syndrome. On one hand, I feel fortunate that my condition isn't half as bad as theirs, on the other hand, I'm saddened and frightened by the thought that eventually it will be.

Everyday, I have giddy spells, aches and pain and dryness in my eyes and mouth. I feel like throwing up and my tummy's bloated all the time. Nobody understands or empathizes with my condition. I am just a walking waste of time. I can't even remember things anymore, simple things like switching off lights or why I open the fridge door.

I have 2 young kids and that keeps me from just giving up on life. I hate my life now and I know I'll never feel good again. My mum probably went through this but never knew what hit her. That's why she was never happy. And that's why I find it hard to smile anymore. So please forgive me if you ever find my gloomy face a pain to see, if you only know what pain really means.

Friday, 6 September 2013

Stubborn Streak


I cut my fringe today. It's something I would never have done because the fringe is not likely to stay that way for long. It seems to have a stubborn streak, always parting at a particular spot. A lot like our human nature really. Once we have got used to something, be it an object, an idea or a lifestyle, we can't let it go and living without it becomes unthinkable, frightening even. I don't really believe I look better with a fringe. In fact, I find it a nuisance to have some hair covering my forehead. Yet I am willing to take a tiny step into an unfamiliar territory. I am hardly brave or adventurous. What do I have got to lose? 

Thursday, 5 September 2013

My Dark Thoughts

My thoughts are random and incoherent lately. I wonder if it's got to do with the brain fog or I'm just confused and tired of thinking about the whole host of problems we have been facing since the beginning of this year. Sometimes I feel that any more of this 'thinking' and my brain would explode into tiny bits of toxin waste. I'm exhausted...physically, emotionally and mentally.



At times, I forget when I watch Ultraman. It gives me a good feeling even though it's meant for kids. The whole idea that there are superior beings out there who would sacrifice their lives to protect weaker living creatures like us with no strings attached. There's no expectation, no judgement and no need for any explanation. 

Monday, 1 July 2013

Fibromyalgia

I haven't been blogging for a while and I feel bad about it. Now my kids are a little older and less dependent on me to entertain them. And I seem to be weaker and sicker than before. I have a new name to add on to my condition - fibromyalgia. I don't know if I will ever resume blogging.

Tuesday, 4 June 2013

酒逢知己千杯少,话不投机半句多

"酒逢知己千杯少,话不投机半句多"CK was so impressed that I used this to summarize our current view about meeting new people and friendship in general. But the fact is I learnt it from a friend whom I used to regard as 知己... too long ago. I doubt she remembers but I can never forget those days of ideological indulgence and freedom from the mundane. Indeed back then, I had a couple of friends whom I could confide in. Now, not so. I still crave for kindred spirits but I'm not searching and I won't.

Tuesday, 21 May 2013

Held Hostage


People often doubt I really have a domestic helper. In fact, it seems more like mockery than doubt occasionally. And often enough I must agree that I am definitely not delegating sufficient tasks of importance to her. As a result, she lacks motivation, job satisfaction and responsibility. On my end, I become stressed, frustrated and quite frankly, disappointed.

I am not a good employer. I don't scold or threaten my helper. I never question her personal life. I give her privacy at night. I let her use her handphone anytime she needs to. I don't check or supervise her work everyday because I trust that she's a mature employee. I correct her objectively when she's making mistakes. I send her for training in her weaker areas. I don't insist she follows us on outings because her job is primarily domestic in nature. That's why she's under achieving...

I want to release her of my incompetent leadership. I hope she can get better pay and work for someone whom she can relate better to. Clearly her loyalty isn't well established here. I would love to continue this working relationship but I guess all good (bad) things must come to an end...

Monday, 20 May 2013

Sjogren's Syndrome... Who Cares?

I must remind myself that there are many others who suffers like me and there are also many others who are willing to help sufferers cope with this chronic disease. Visit Sjogren's Syndrome Foundation to find out more. I wish I live nearer to these people who are so supportive.

Thursday, 18 April 2013

Sick Thoughts


The best advice I heard from CK is '... listen to your body...'

I started having tingling sensation in my hands and feet two days ago. I was hit by fatalistic thoughts of stroke, kidney failure and some permanent nerve issues from slipped disc. In short I panicked. Yet I was reluctant to seek medical help... I don't really know who to see. Today my foot refused to function. It feels like an old sprain injury. I limped to school to fetch Alfee.

As more and more ailments surface, I find myself less and less willing to do anything about it. When it all started in the beginning of this year, I was hopeful and eager to try out all sorts of lifestyle change. But nothing seems to work out and my body is protesting against the effort. I found pains and aches in my body that I never knew existed or successfully ignored. The only certainty is that my condition is real and the best I can hope for is remission.

All hopes of ever returning to the workforce are lost. Although it doesn't mean I can't lead a fulfilling life, I can't live like before.. that's for sure. Forgive me but the future seems bleak for me now. And my body... she's angry with me now.

Wednesday, 3 April 2013

Melancholy


My thought process has been hijacked by darkness and frost. I used to hold back my tears but increasingly so, I find my eyes dry even though they still sting.

My condition has cornered me into living a full, meaningful like or watching myself wither over time. I just keep falling, desperately trying to grab onto anything that resembles hope and purpose. Yet, all I find is slimy, slippery filth.

When my sister was sick, she regressed and became child like. She occasionally asked for hugs from my parents and she even talked like a child. I turned to my parents when I found out about my condition. Unlike cancer, my condition seems harder to comprehend for them. Strange but they are still the ones I seek for strength and comfort despite their age and own fragility. Almost immediately after I spilt the beans, my dad told me keep my woes from my mum. She worries too much and it affects her very negatively.

I searched my dad's face for any sign that I matter. Without sounding self centred, I'm the one sick and need support. Yet I m expected to show resilience and 'fix' myself. My empathetic and counsellor side noticed weariness and sadness in his eyes. He's an old man and he really doesn't know how he can help me (not that I am asking for help).

When I needed my parents then, my sister needed them more. I was left to fend for myself. Now I m again alone. I cannot begin describing the loneliness building up on me.

Sunday, 31 March 2013

Sjogren's Syndrome


The blood tests show that I have Sjogren's Syndrome, an autoimmune disorder. It's too mild for medication yet it can easily deteriorate into organ issues within months. It's like having a time bomb placed inside my body ... by myself. Or maybe it's more like a lifestyle regulator implanted by God. 

In a way, I'm thankful for this. I have been neglecting my health, psychological and emotional well-being for a very long time, always emphasising on my intellect and thought process. Now I am forced to exam my lifestyle and weed out those harmful elements that can further destroy my health. My disorder isn't life threatening now so it gives me more space and time to address factors that otherwise would have been cast aside for more immediate medical demands.  

At the same time, I feel depressed. I'm sick. There's no doubt about it now. The report says so. All the nagging problems I have been experiencing are very real. I am fatigue, I am seeing ghostly images from the corners of my eyes, my body is constantly aching and my mouth dry. Sometimes, I find myself breathing harshly even when I am sitting down. After the report, I have new worries... a simple fever, a heat rash or even some bad warm lighting can trigger anxiety and panic in me. Am I going to get kidney or liver failure?

I am responsible for my own health... but what should I do now? Or should I do nothing? I have nothing medically conclusive to do. Diet or alternative healing? Exercise or relaxation? I don't know, really. Meanwhile, I am also responsible for my kids' lives.